Collegiate Closure in Wisconsin

 

My daughter last saw her college campus in Wisconsin in March of 2020 in the rear-view mirror of a van I was driving to California. Her brother, Truman, my BFF Mary, and I had flown across the country to rescue her. The pandemic had just begun, and she was told that she needed to move out immediately. None of us could have predicted that she wouldn’t return to campus for two and a half years, that is, not until today.  

Many of you remember our National Disaster Massive Road Trip (NDMRT), as Truman named it. We rented a huge van, which we immediately named The Beast, and which still barely fit all of Geneva’s belongings, and we drove four days back to California. On the NDMRT, we encountered many fellow unhinged cross-country travelers, everyone trying to get somewhere fast, all of us eyeing each other with trepidation as we sought to keep our distance from one another, both on the road and at every rest stop. 

 

The trip felt both surreal and perilous, as if we were living out a real-life disaster film. On the third day, we white-knuckled The Beast through a blizzard atop a Wyoming mountain pass, a heart-pumping, frightening experience of unplowed roads and icy white-outs. At the hotel that evening, I was filled both with relief that we had survived the day’s drive, and with the sense of trauma we were all just beginning to experience; we were never going to forget this NDMRT or the earliest days of our new pandemic mindset.

 

Our stage of life determined how the pandemic would affect us. Like all kids, my children had to negotiate years of disrupted academic and social development. My parents had to isolate themselves in their senior living apartments. As they were among the most vulnerable to Covid, we worried for them daily.

 

I think especially of one group that was hit particularly hard: graduating seniors. Their lives came to an abrupt halt just as they were supposed to “commence.” Their best year of school ended suddenly with no final projects, no dances, nor even with goodbyes. Instead of moving on to exciting adulting adventures, the new graduates moved back home with their parents and watched goodbye speeches from their college presidents on YouTube. Although we were happy to have unexpected bonus time with our daughter, we knew she was devastated to miss the end of college. How does one move on to the next stage of life when the previous stage hangs unfinished and in limbo?

 

This weekend, the limbo will end. Two and a half years after that fateful March adventure, we’ve returned to Beloit College for the make-up graduation ceremony that the class of 2020 never got. As we walked around campus today, our Boonie shed more than a few tears. She pointed out favorite haunts, noted what has changed and what was the same. I imagine she’s feeling so many complicated emotions. And tomorrow she’ll get to experience the graduation ceremony she and all the graduates of 2020 deserved. We’ll cheer loudly for her, and so will my brother and my parents (Beloit grads themselves, who met here 65 years earlier 🥹). I’m so grateful to be here. For Geneva’s sake, and for the sake of everyone in the family who is still reflecting on how our lives have changed, I’m so glad we made this trip.

30 Years

 

When people ask me the secret to a long, happy married life, I want to say: marry a poet. 

 

Robert Frost said that “poetry is when an emotion has found its thought, and the thought has found words.” During uncertain and chaotic times, poetry consoles us as we listen closely to words that make us feel less alone and more alive. Amanda Gorman reminds us that “there is always light, if only we’re brave enough to see it, if only we’re brave enough to be it.” 

 

We can’t all be or marry poets. But we can learn from them. The truth is, I have more questions than answers about the secrets to a happy life together. But I have learned well from my husband, Andy. 

 

His example tells me that we should retain our humor and sprinkle it generously into our daily interactions, especially when life feels overwhelming. He reminds me of the importance of remaining curious about one another and maybe even occasionally planning surprises that knock a spouse’s socks off.  

 

On the occasion of our 30th wedding anniversary, Andy presented me with a beautiful 167 page book with 100 previously-unseen poems he had written over the last year. Instantly, this book became my most prized possession, a physical manifestation of his love. Like Linus with his blanket, I’ve been carrying it from room to room around the house, reading a few poems at a time. I like feeling the weight of the declarations of his devotion in my hands. 

 

The other well-kept surprise Andy planned was a backyard gathering of friends, there to celebrate our 30 years together. I knew my sweet husband must have something up his sleeve because he’s romantic like that. Like the evening we said “I do” all those years ago, this was a night I will always remember. Thank you, Andy for 30 years of love, laughter, play, and adventure. Let’s have 30+ more❣️

Our Antidote

The world is all too much right now. I’m continually feeling the need for a recharge and a reset, and I find that nothing fills this wish like a getaway to the sea. If I could, I would begin and end every day with wet, sandy feet, with wind-blown hair, and with a walk along the beach. Some like the mountains. I prefer the ocean. 

 

Maybe it’s the negative ions in the salty, humid air that calm my mind and lift my mood. Maybe it’s the gentle acupressure on the soles of my bare feet in the sand that grounds me and connects me to the earth. Maybe it’s the sound of the crashing waves that puts me in a meditative state and slows my own rhythmic breathing. Maybe it’s the memories of so many hours watching my children explore tide pools and fill endless buckets of watery sand that comfort me.

 

The peaceful soundscape, the consoling sights, the tactile pleasures of a barefoot walk, and the endless horizon of the ocean all remind me how fortunate I am to regularly visit a place of such calm beauty.

Daddy Brings It

On this Father’s Day, I’m reflecting on my good fortune in meeting this man all those years ago. When I chose him to be my guy, I knew that in addition to being a man of great integrity, intelligence, compassion, and all-around goodness, he would be an exceptional father. Watching him interact with our kids in all of life’s daily, small moments brings me such delight. Even though there are all kinds of demands on Dr. Andy’s time and attention, Daddy Andy’s primary priority has always been the kids and me.

 

Andy brings the joy. Spontaneous dance sessions in the living room have been known to occur, whether the kids want them or not. When he walks in the front door, Andy brings his smile, a happy greeting for all, and a kiss for me. He’s a naturally positive person who gives everyone in his life his best self. 

 

Andy brings the teaching. As one might expect in our home, impromptu writing lessons at the dining table frequently occur. Soon after they could read, Andy began dissecting sentences, and later, paragraphs, with the kids. He instilled in them an interest in writing. That interest developed into a passion. As a result, both our bookend kids call themselves writers. 

 

Andy brings the energy. He’s up for practically anything and loves new adventures. Many locals have witnessed his daily walks with Jukie. They leave the house each day, often with no destination in mind and return hours and miles later with tales of new friends made and old friends encountered. One can measure their stamina in the shoes I have to replace every couple months. “Better shoes than cars,” Andy says. 

 

Andy brings the laughter. He can’t sit anonymously in a dark theater without his distinctive, unrestrained, and ultimately contagious howl giving away his presence. Even though we’re all used to seeing a microphone in Andy’s hand, he rarely needs one because his voice projects. When our kids were little, I regularly had to remind Andy to quiet his natural stage voice during nap time. But the laugh — he can’t help that. We can hear it from every corner of the house. And no matter what I’m doing, I love that sound. 

 

Andy brings the care. He wakes up every morning thinking, and sometimes asking, what he can do to improve our lives. We’re on his mind all day long. We feel and appreciate his love and devotion. And I am profoundly grateful for the wisdom to have chosen Andy to be my children’s dad. 

Choosing Joy

 

Happy, happy birthday to our dear Jukie! Although it feels impossible to believe, today we celebrate the 21st anniversary of his birth. Wasn’t it just yesterday that Jukie was spinning endlessly on the tire swing in our back yard, running with abandon across the expanse of a neighborhood park, standing on his head against the wall while giggling, and running around our rooftop at midnight (while also laughing his head off)? Ah, the memories.

No one really teaches parents how to transition through different stages of parenthood as their children grow. We discover and navigate our way through each age, learning to adjust our parenting strategies as we go. Just as one can’t ever feel quite ready to become a parent, I think we’re often not quite ready to see our kids’ childhoods end. No one tells parents how wistful they will feel when they recall hearing their kids’ young voices or holding their little hands. At the same time, nothing prepares a parent for the thrill of seeing their young adult child launch and thrive on their own.

Parenting a child with profound autism sometimes makes Andy and me feel as if we exist on a different planet from the rest of the world, a planet where everything is heightened. Parents like us fear for our children’s future, knowing they will not launch as their siblings will. We sometimes feel guilt, wondering if we are doing enough to help our kids reach their potential. We also take pride in even the smallest of accomplishments, as we know that reaching each goal took tremendous tenacity and effort. And sometimes we feel isolated, wondering if we have any idea what we’re doing. If we’re lucky, we have friends who also live in this alternate world, who know and understand. 

For autism parents, birthdays can bring up a sense of ambivalence: we are reminded of all that our child will never experience, and thus we grieve for the dreams we had for our children. I don’t know what the future holds for my son Jukie. And this sense of the unknown terrifies me. And while all of those conflicting feelings leading up to my son’s birthdays are normal and expected, on the anniversary of Jukie’s birth, I protect our tenuous hold on optimism and forward momentum by choosing to focus on joy. Jukie is joy.

Zen Jukie lives in the moment, and he trusts in the world around him. He doles out pure love in high fives, laughter, and hugs, and expects and receives all of that right back. He trusts and accepts others and complies with most of what he is asked to do. He believes in sharing and being shared with, such as by snagging the lime from my drink the moment I turn my head. Sharing his big and often unexpected smile, Jukie busts out laughing when nothing seems funny, and we can’t help joining him in his infectious joy. 

And today, the occasion of his 21st birthday, our boy Jukie won’t quite understand the reason for the cake, the gifts, or the extra kisses. He won’t know the significance of this milestone birthday. But Jukie will feel our love, our attention, and our focus. He will know that we treasure and adore him. And we will feel so grateful, and so joyful, for having Jukie in our lives.