Monday, April 19, 2021

Jukie Returns to “Normalcy”

Today was Jukie‘s day to return to in-person school! Although his classmates have been back in person for weeks, we did not feel it was safe to send Jukie back until he had reached full immunity after his second vaccination shot. Thank you, scientists!


Normally Jukie takes the bus to school about 30 minutes away in the next town over. But today, Andy and I dropped him off together, wanting to see Jukie’s reactions to his old haunt, and wanting to see the reactions of the school staff that missed him so. Filming his initially skeptical reactions to the news that he was returning to school, we reveled in every element of Jukie’s triumphant return after more than an entire year without a single in-person experience with teachers, peers, or therapists. 


For the past year, school has existed only through small Zoom boxes on Jukie’s iPad. We often wonder what Jukie’s experience of the pandemic feels like to him and how he makes sense of the new ways in which the world operates. In the early days, masks on people’s faces greatly disturbed him. He didn’t understand why, overnight, everyone disappeared behind a face covering. 


Although not able to communicate verbally, Jukie is highly intuitive, having learned how to read facial expressions for context and connection. In fact, reading people is one way that Jukie negotiates the common misconception that people with autism are not social. The masking and social distancing that we have all been practicing, and Jukie’s inability to engage in school activities that give him some independence from his doting parents, have made it more difficult than ever for him to connect with others and to feel a sense of normalcy. Routine is important to people with autism, and he had suddenly lost all his school routines and with no way to process any of the confusing changes. 


And can you imagine Jukie wearing a mask? He won’t even wear a Band-Aid! A year into the pandemic, I think our record at keeping a mask on Jukie is about 90 seconds. For the last 13 months, Jukie’s only outings have been his daily walks with his dad. They walked for miles and miles every afternoon and usually into the evenings. If you live in Davis, there’s a good chance you’ve encountered them walking along the greenbelts or in the arboretum, leaving behind them a trail of branches Jukie pruned from the trees they pass. Since this time last year, our two family hikers have walked over a thousand miles. I bet they’ve covered every path in town. 


We waited until this morning to tell Jukie that today he would finally be able to return to school. I’m not sure he believed us until we pulled into the school parking lot. His eyes grew wide, and I think we all felt like maybe this was a dream — it had just been so long. While many of us spend time in long conversations with others, on social media, in Zoom rooms, or in our heads, Jukie lives in the center of his own awareness. Now that Jukie has returned to the teachers who know him so well, we look forward to him blossoming into a more comfortable version of himself.



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